Contractor Rare Disease Liaison, Turkey

Why Join Us?

Be a hero for our rare disease patients

At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them. 

Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.

If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultrafocused – Work together to fearlessly uncover new possibilities

The Rare Disease Liaison (RDL) will raise awareness within the medical community of X-linked Hypophosphatemia (XLH), Long-Chain Fatty Acid Disorders (LCFAOD), Mucopolysaccharidosis VII (MPS VII), homozygous Familial Hypercholesterolemia (HoFH) and of identification of pediatric and adult patients.

This position requires consultative and relational interactions to educate the medical community by in-person visits, phone, video, Zoom, and email to healthcare professionals (HCPs). Each RDL will be assigned a geography and will work closely with a medical field team member, i.e. Medical Science Manager (MSMs), to coordinate respective efforts, as needed. 

The successful candidate will possess excellent scientific communication and interpersonal skills and demonstrate the ability to work effectively and collaboratively in a key cross-functional role with internal and external stakeholders. 

Work Model:

Field: Officially documented as working as a member of the Ultragenyx field team, generally interacting with third parties on behalf of Ultragenyx.

Responsibilities:

• Make daily calls and in-person visits/video (Zoom) interactions within the assigned geographic accounts.
• Raise awareness within physicians, nurses, and office staff within the assigned territory of XLH, LCFAOD, MPS VII and HoFH disease state information and of pediatric and adult patient identification.
• Reactively educate physicians on foreign (if related product is not approved in Turkey) or Turkey-approved product label and transition these physicians to the MSMs team in case more in -depth discussion is required.
• Demonstrate superior disease-state knowledge and effectively engage healthcare professionals about the rare diseases within the scope of the role and patients identification.
• Accurately communicate technical, scientific, and disease management information to HCPs.
• Proactively build productive working relationships with internal/external stakeholders; drive decisions from multiple stakeholders; understand different positions and flex communication style accordingly.
• Achieve monthly key performance indicators, which includes suspected patients’ find, field activities and CRM documentation.
• A member of the field team of clinically focused professionals who will function within the Medical Affairs organization and will closely works with the MSM in Turkey.
• Lead and create a dynamic for innovation and successful implementation of the medical activities in alignment with the strategy.
• Identify Key Opinion Leaders (KOLs), and establish and maintain scientific relationships with KOLs; connecting to KOLs in academic and community centers.
• Develop qualitative relations with patient and physician associations and structure strong collaboration to increase disease awareness.
• Pair the research and educational needs of external constituents with the appropriate Ultragenyx team member and resources.
• Serve on cross-functional teams within Ultragenyx as a conduit for accurate and updated medical/market communication, medical/market intelligence, emerging clinical trends, and HCP feedback.
• Develop and execute territory plans in alignment with regional and national plans,
• Provide clinical presentations and information in response to unsolicited questions (as appropriate) in academic, community, and healthcare provider settings.
• Provide Scientific and Medical information updates,
• Provide scientific support at medical congresses,
• Provide timely feedback/information on emerging clinical/scientific teams and opportunities to internal stakeholders,
• Provide scientific support for appropriate educational initiatives. Ensure all activities are compliant with company policies and SOPs (standard operating procedures).

Requirements:

• Minimum – Bachelor’s degree with 4+ years of science and business skills experience.
• Have excellent communication and presentation skills, as well as the ability to build strong relationships.
• Strategic analytical acumen and territory management skills.
• Clinical knowledge/expertise and ability to communicate and present clinical data effectively.
• Work cross-functionally & collaboratively with internal stakeholders including (but not limited to) MSMs, other medical functions, clinical operations, and patient services.
• Ability to collaborate with MSMs to achieve the patients’ find targets based on disease prevalence/scientific publications/other meaningful sources from the assigned geography.
• Strong computer skills utilizing telephone and / or video technology.
• Excellent organization and time management skills required.
• Approximately 80% (dependent on geography) travel is required, mainly in Turkey; overnight travel is required as needed. #LI-CK1 #LI-Remote

Full Time employees across the globe enjoy a range of benefits, including, but not limited to:

• Generous vacation time and public holidays observed by the company
• Volunteer days
• Long term incentive and Employee stock purchase plans or equivalent offerings
• Employee wellbeing benefits
• Fitness reimbursement
• Tuition sponsoring
• Professional development plans
• Benefits vary by region and country

Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at talentacquisition@ultragenyx.com.

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Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation. Inquiries on developing a recruiting relationship with us, may be directed to: talentacquisition@ultragenyx.com.

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